Need Help - want somebody to chat to.
We run local groups run by local volunteers.
Epilepsy is a condition that affects the brain and causes repeated seizures. Epilepsy is estimated to affect more than 500,000 people in the UK. This means that almost one in every 100 people has the condition. We are a network of friends who share experiences of surgery for epilepsy. Epilepsy Surgery Friends offers support along with talking and sharing with those who have already experienced surgery.
Our aim is to support as many patients as possible who are offered this type of surgery to get through it as smoothly as possible. Members who have had this type of surgery share their experiences of it with those offered it to support them make the decision that's right for them. We ultimately would also like to offer our support in hospitals. We now also have our own funding page where members make donations created from their own fund raising initiatives.
We are here to support as many patients as possible
Cause of Epilepsy
The cause of most cases of epilepsy is unknown, although some people develop epilepsy as the result of brain injury, stroke, brain tumors, infections of the brain, and birth defects. Epileptic seizures are the result of excessive and abnormal nerve cell activity in the cortex of the brain. The diagnosis involves ruling out other conditions that might cause similar symptoms such as fainting and determining if another cause of seizures is present such as alcohol withdrawal or electrolyte problems. This may be partly done by imaging the brain and performing blood tests. Epilepsy can often be confirmed with an electroencephalogram (EEG), but a normal test does not rule out the condition. Read more.
What we can offer
If you or anyone you know suffers from epilepsy and have been told that you may be suitable to have surgery for it, you don’t have to go it alone because we are here to support you. Our group can help you cope better and feel less isolated as you make new connections with others facing this difficult journey. Our support group shouldn't replace your standard medical care, but it can be a valuable resource to help you cope. Read more.
Sharing experiences with others can provide encouragement, positivity, bravery and resilience.
Hits from 1 January 2020